AAHD PRESENTING ON WEBINAR ABOUT ALL OF US RESEARCH PROJECT
Note: through the summer months, we will be sending the NDNRC Update every other Friday.
One of the new initiatives we are working on is doing education and outreach to the disability community about the NIH’s All of Us Research Project. This coming Thursday, June 21, 2018, we will be conducting a webinar with the Friends of NCBDDD to inform disability and health organizations, researchers, public health practitioners and key influencers about the All of Us Research Program, as well as the importance of including people with disabilities in this large inclusive research program. The webinar will include information about ways the disability community can be engaged in this national effort across communities in the United States. Speakers from HCM Strategists, representing the All of Us Research Program Engagement Team and the American Association on Health and Disability will provide an overview of the program, as well as descriptions of efforts currently underway. A questions and answer segment will follow the presentation. Please join us and register for the Friends of NCBDDD on June 21, 2018 at 2:00 ET for this informative webinar that will highlight how advocates, researchers and people with disabilities can be involved.
As part of their Beyond the Basics project, the Center on Budget and Policy Priorities (CBPP) has released a new fact sheet to help assisters understand what the new tax law means for MAGI calculations entitled “How Does the Tax Bill Affect MAGI?” AAHD has partnered with CBPP on a project called the Consumer Assistance Coordination Hub (CACH). The CACH supports individuals and groups that provide enrollment assistance. To read more about this project, check out our blog post.
Families USA has released a new issue brief which looks at Medicaid and the importance it has for children with special healthcare needs. To learn more about this issue brief, check out our news item.
The Kaiser Family Foundation has just released a new issue brief which looks at the data on those individuals who will potentially be affected by new Medicaid work requirements. To learn more about this issue brief, check out our news item. If you want to learn more about Medicaid work requirements, we published a blog post in February which captures all the news and resources on the waivers where states are adding work requirements to their Medicaid programs.
Earlier this month, we highlighted two blog posts from the Georgetown University Center on Health Insurance Reforms (CHIR) summarizing comments on the proposed rules for short-term, limited duration health plans made by consumer advocates and major medical insurers. More recently, they have added to this series looking at the comments received from state insurance departments and short-term insurers and brokers.
The National Association of States United for Aging and Disabilities (NASUAD) is pleased to announce the release of the first module of the HCBS Business Center Toolkit, “Disability Network Business Strategies: A Roadmap to Financial and Programmatic Sustainability for Community-Based Organizations”. This resource is a “how-to’ guide designed to help Community-Based Organizations (CBOs) evaluate, plan, develop and implement strategies to help build and sustain their organizations in various business climates. The first module, Step 1: Prepare. Understand the Business Environment and Your Place within It provides guidance to CBOs serving people with disabilities on the information, data and people needed to inform the development of their strategic plan.
The University of Washington Healthy Aging Rehabilitation Research Training Center (RRTC) has released a plain language summary entitled “Falling Occurs All Too Often for People Aging with Muscular Dystrophy, Multiple Sclerosis, Post-Polio Syndrome and Spinal Cord Injury.” They also have a related fact sheet entitled “How to Prevent Falls.”
Are you looking for local partners to help with outreach to the disability community? The NDNRC has Community Outreach Collaboratives (COCs) which work to increase collaborations in the community, dissemination and outreach efforts and enrollment of people with disabilities in the ACA marketplace. You can find a COC, on the COC page of our website.
Archives of our weekly updates are available on the NDNRC website.